Nystagmus: Symptoms, Causes, and Treatments

Nystagmus: Symptoms, Causes, and Treatments

Nystagmus is a condition in which the eyes make uncontrolled, repetitive movements. These movements can be slow or fast, side-to-side (horizontal), up-and-down (vertical), or even in a circular (rotary) motion.

These involuntary eye movements can affect vision, depth perception, and balance. In some people, it can also cause a noticeable head turn or tilt, as they try to position their eyes in a way that makes the movements less severe.

While some people are born with nystagmus (congenital nystagmus), others develop it later in life (acquired nystagmus) due to an underlying health condition or neurological problem. Understanding the symptoms, causes, and available treatments is key to managing the condition and preserving vision.

Types of Nystagmus

Nystagmus can be classified in several ways based on when it appears and the direction of the eye movements:

  1. Congenital (Infantile) Nystagmus

    • Appears within the first few months of life.

    • Often linked to inherited eye conditions or developmental issues.

    • Eye movements are usually horizontal.

    • Children with congenital nystagmus often adapt and may not notice major vision changes.

  2. Acquired Nystagmus

    • Develops later in life, often due to an underlying medical or neurological condition.

    • May cause more noticeable vision disturbance because it develops after normal vision has been established.

  3. Jerk Nystagmus

    • The eyes drift slowly in one direction, then quickly “jerk” back to the starting point.

  4. Pendular Nystagmus

    • Eye movements are smooth and equal in both directions.

  5. Manifest Nystagmus

    • Always present, regardless of whether both eyes are open or closed.

  6. Latent Nystagmus

    • Appears only when one eye is covered.

Common symptoms of Nystagmus

While symptoms vary depending on the type and severity, common signs include:

  • Rapid, uncontrolled eye movements – horizontal, vertical, or circular.

  • Shaky or blurred vision – objects may appear to “move” or “jump”.

  • Difficulty focusing – especially on distant or small objects.

  • Head tilt or turn – to find a “null point” where eye movement is reduced and vision is clearer.

  • Light sensitivity (photophobia) – discomfort in bright sunlight or artificial lighting.

  • Balance and coordination problems – especially if linked to inner ear disorders.

  • Eye strain – from constant effort to stabilise vision.

Causes of Nystagmus

The causes differ depending on whether it is congenital or acquired.

1. Causes of Congenital Nystagmus

  • Genetic eye conditions – e.g., albinism, congenital cataracts.

  • Optic nerve hypoplasia – underdevelopment of the optic nerve.

  • Retinal diseases – affecting the light-sensitive layer at the back of the eye.

  • Neurological development disorders – issues in the brain areas controlling eye movement.

2. Causes of Acquired Nystagmus

  • Neurological disorders – multiple sclerosis, brain tumour, stroke, or head injury.

  • Inner ear problems – vestibular neuritis, Ménière’s disease.

  • Medication side effects – anti-seizure drugs, sedatives, alcohol toxicity.

  • Eye diseases – cataracts, macular degeneration.

  • Vitamin deficiencies – especially B12 or thiamine in severe cases.

How Nystagmus is Diagnosed?

An accurate diagnosis is essential for effective treatment. At Clarity Eye Surgeons, we follow a step-by-step approach:

1. Comprehensive Eye Examination

This is the first step in evaluating any eye-related problem. It involves checking visual clarity (sharpness of vision), assessing eye structures such as the cornea, lens, retina, and optic nerve, and examining eye movement patterns. The doctor also looks for signs of refractive errors (like nearsightedness or farsightedness), cataracts, glaucoma, or retinal conditions that may affect vision.

2. Visual Function Tests

These tests evaluate how well the eyes focus, follow moving objects, and work together as a team. They may include tests for tracking, depth perception, peripheral vision, and contrast sensitivity. Such assessments are important to detect conditions like strabismus (eye misalignment), amblyopia (lazy eye), or coordination problems that affect reading, balance, and daily activities.

3. Neurological Assessment

If eye problems seem related to the brain or nervous system, a neurological evaluation may be recommended. This could involve testing reflexes, muscle strength, coordination, and nerve function. The purpose is to rule out or confirm conditions like multiple sclerosis, stroke, or nerve palsies that can interfere with eye control and movement.

4. Eye Movement Recording (Electronystagmography or Videonystagmography)

These specialized tests are used to study involuntary eye movements, known as nystagmus, which often relate to balance disorders or neurological problems. Using electrodes around the eyes (ENG) or video goggles (VNG), the equipment records the direction, speed, and rhythm of eye movements. This helps identify whether the issue originates from the inner ear (vestibular system) or the brain. 

5. Imaging Tests (MRI or CT Scan)

In cases where structural issues are suspected, doctors may order brain imaging. MRI (Magnetic Resonance Imaging) provides detailed images of the brain, optic nerves, and inner ear structures, while a CT scan gives a quick view of bone and tissue structures. These imaging tests help detect tumors, injuries, inflammation, or vascular abnormalities that could affect vision and eye movement.

Treatment options for nystagmus

Treatment depends on the underlying cause, type, and severity of symptoms. While nystagmus cannot always be cured, many approaches can reduce symptoms and improve quality of life.

1. Correcting Vision Problems

Glasses or contact lenses – to improve clarity and reduce strain.

Glasses or contact lenses
  • Prism lenses – to help align vision and reduce abnormal head posture.

2. Treating the Underlying Cause

Treating the Underlying Cause
  • Surgery for cataracts or other correctable eye diseases.

  • Managing neurological or inner ear disorders.

  • Adjusting or stopping medications that trigger nystagmus.

3. Medications

  • Certain drugs such as gabapentin or memantine may help in some acquired cases.

4. Eye Muscle Surgery (Kestenbaum Procedure)

  • A type of eye muscle procedure performed to shift the “null point” into a straight ahead position.
  • Can reduce the abnormal head posture. 

5. Vision Rehabilitation

  • Low vision aids. (magnifiers, large-print reading materials)

  • Orientation and mobility training for those with significant visual impairment.

Living with Nystagmus – Practical tips

  • Use good lighting when reading or doing close work.

  • Wear sunglasses or tinted lenses to reduce glare outdoors.

  • Take frequent breaks from near tasks to rest the eyes.

  • Position reading material or a computer monitor at your null point.

  • Avoid alcohol or sedatives that can worsen symptoms.

  • Have regular eye check-ups to monitor changes in vision.

Prognosis

  • Congenital nystagmus is usually stable over time, and many people adapt well.

  • Acquired nystagmus may improve if the underlying condition is treated, but in some cases, symptoms can persist.

  • Early diagnosis and intervention greatly improve the chances of maintaining good functional vision.

Why choose Clarity Eye Surgeons for nystagmus care?

At Clarity Eye Surgeons, we combine advanced diagnostic technology with personalised care to manage even the most complex eye movement disorders. Our ophthalmologists work closely with neurologists, audiologists, and rehabilitation specialists to provide a complete, patient-focused treatment plan.

Our approach includes:

  • Detailed and accurate diagnosis.

  • Tailored treatment strategies for each patient.

  • Access to advanced surgical and non-surgical options.

  • Ongoing support to maximise visual comfort and daily function.

Conclusion

Nystagmus can impact vision, balance, and quality of life, but with the right diagnosis and treatment, many people can significantly improve their visual comfort and daily functioning. Whether it is congenital or acquired, timely evaluation by an experienced eye specialist is essential to identify the cause and create a personalised management plan.

At Clarity Eye Surgeons, we are committed to providing expert care for nystagmus and other complex eye movement disorders. Using advanced diagnostic tools and tailored treatment strategies, our team ensures you receive the best possible support for your vision and overall eye health.

If you or your child are experiencing involuntary eye movements or vision disturbances, do not wait — book an appointment with Clarity Eye Surgeons today and take the first step towards clearer, more comfortable vision.

Author bio 

Dr Parth Shah is a director and principal ophthalmologist at Clarity Eye Surgeons in Canberra. With extensive training and experience, he is renowned for his expertise in the field. Dr Shah is dedicated not only to performing successful surgeries but also to patient education. His compassionate approach, combined with technical proficiency, has earned him the trust and gratitude of countless patients. He is a true advocate for eye health and a trusted name in the Canberra ophthalmology community.

FAQs

Yes. Some cases of nystagmus, especially those caused by medication side effects, alcohol use, or short-term inner ear infections, can resolve once the underlying cause is treated or removed.

Some forms, particularly congenital nystagmus, can be inherited. If there is a family history of the condition, the risk of a child developing it may be higher.

Yes. Simple adjustments such as avoiding fatigue, reducing alcohol intake, and using proper lighting can help reduce symptom severity in some people.

This depends on how much your vision is affected. Many people with mild congenital nystagmus can drive safely, but those with significant visual disturbances may not meet the vision requirements for a driving licence. Always consult your eye specialist.

Yes. Most children with nystagmus attend mainstream schools. However, they may benefit from classroom adjustments such as seating near the front, larger print materials, and extra time for reading tasks.

Congenital nystagmus is usually stable, but acquired nystagmus may change depending on the progression of the underlying condition. Regular monitoring is important.

Yes. In some individuals, stress, tiredness, or illness can temporarily increase the intensity of eye movements.

There is no proven exercise that can cure nystagmus.

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